This may be long but worth the read.
Today marks the day that our Skylar and our families lives changed forever. The day of August 30th will no longer be an ordinary day in our lives, it was the day that our precious baby girl was diagnosed with stage 4 synovial sarcoma a rare, aggressive form of cancer. What allot of you don't know is after Skylar's lung surgery it was determined by 3 of the best hospitals that Skylar wasn't only battling 1 type of cancer her little body had been battling 2 primary cancers. Yes, you read that right not 1 but 2. The second cancer was an adult lung cancer called adenocarcinoma, there again you read that right an adult cancer. The drs. at Childrens Nationwide in Columbus calls Skylar a unicorn she is the only one in the world with this. Yes, there again you read that right. LOL So, when I write this you will understand that this didn't happen to Skylar by chance but by God choosing her to be an ambassador to not only childhood cancer but adult cancer as well at the age of 10. Skylar has shown such strength and determination while going through everything that she has endured. She has kept that beautiful, charismatic smile on her face the entire time and never was it a put on and she has had such laughter in her spirit and soul. Skylar has had to grow up beyond her years but has held on to her youthful spirit at the same time. She has had to learn some tough life lessons at a very young age, but it has made her wiser and stronger. Skylar is the epitome of STRONG-hence "Skylar Strong" was birthed.
The year has gone by quick at some points and slow at others. There has been allot of twist and turns along the way but the one thing that has not twisted and turned has been our Faith in our Saviour Jesus Christ. Skylar as well as our family love Him just as much today as we did a year ago and our love for Him continues to grow as we see such miracles come from Him by using Skylar. I always say our Skylar but she really isn't ours, God has lent her to us and giving us the privilage and honor to be her parents to guide her here on earth to to do His work for Him. I can honestly say she is doing it!!! She loves Jesus with all of her heart and she shines His light wherever she goes you can just see it on her. I as her mother am humbled by this beyond compare. I know God has great things in store for her life as He's already preparing her path, it may be unknown to her and us but not to Him, her footsteps are ordered.
I would like to continue to thank all our family, friends, community, schools, surrounding communities, drs. and caretakers, you all have played a huge part in keeping our family strong as well. Your prayers and generosity has been humbling beyond belief. We all still get so inspired when we see Sky's face on signs in peoples yards or seeing someone with a Skylar shirt on, or a bracelet around their wrist its just an amazing feeling knowing that people haven't forgotten and still are standing there in the gap for us when we are having a very rear weak moment. To you all I say thank you.
Skylar still has a long road ahead of her, scans and mris every 3 months, therapy still once a week, the daily challenges of learning to live with a prosthetic leg, the fears of "it" returning and knowing that if "it" does return what she is in for since she now has had 2 cancers, you can only imagine what races through her head as well as ours but I can say God quiets those thoughts quite a bit but we are human and it happens.
But, one thing is for sure we love God, we love our family and friends and we love our community.
We are Skylar Strong!!!!!! 6 months in remission!!!!! we will celebrate with funfetti cake tonight and by watching Skylar on the Champion soccer field with her team tonight!!!! and yes you heard that right: 1 year later in remission and playing soccer, we serve a Mighty Big God!!!!
-The Scarnecchia Family, August 2017